Friday, May 9, 2014

A Great Explanation and Resource

When I searched and searched for resources on micro-preemies and eating issues, I didn't find much.  I found a lot about G-buttons and invasion therapies, but nothing on how to do it without.  But I did end up finding a valuable blog of a lady whose daughter was born at 25 weeks.  She went through SO many of the same things I did and it actually was a reason I began this blog aside from my main one, because I wanted to join her in telling other Mom's that they are not alone in this really difficult time.

Countless times I have gone back to her site and have re-read her tips and suggestions.  Today as I was cleaning my "favorites" folder on my side tab, I again noticed her saved site and clicked over and began reading.  Something she wrote really caught my attention.  She was explaining about how family and friends react and the emotions that happen when people may not understand.  It is so draining and disheartening sometimes because unless someone has lived through these times, it is unfathomable.    Here is what she wrote...

"Most are undoubtedly well-meant, but when your child has feeding issues, you're going to get some interesting comments. Some people think you must be a bad (or stupid) parent, because the idea that "babies will eat what they need" has been pounded into people's brains by baby magazines and books. Others say, "Oh, but she looks great!" As if to say you shouldn't worry, even though myriad of doctors say you should. Still others will be shocked that you aren't feeding your baby only "good foods" like fruits and vegetables; they simply can't imagine the situation could be serious enough that your primary concern is calories - no matter where they come from. Some people will balk that you let your infant watch TV (for example) while he's eating. "The American Academy of Pediatrics says children under 2 shouldn't watch TV at all!" they say. True, you reply. But that's the only way you seem to be able to get those calories down ...

Hang in there and try to find other parents who have children with eating issues. Only they can fully understand how difficult the situation is on you and your child. Here are two good forums made up of parents who know what you're going through."
 
 
Our miracle daughter today still exhibits eating issues.  She throws up a lot at any new texture, has an amazingly sensitive gag reflex that if anything little even remotely sets it off, she will vomit.  If she cries too hard, she throws up.  This is hard especially when you are training to have them sleep at night because. You worked so hard all day to get those calories in that you don't want to undo everything by allowing them to cry.  She is almost 2 now and as anyone knows, two-year-olds are constantly on the go go GO!!!  It is amazing to see her delight in so many things the Lord has created!  But that burns calories FAST!  I offer her food all day long, pick fatty foods, and sometimes allow her to eat macaroni 3 days in a row.  I don't feel like she is at a place where she can't eat, and so I feel like I do the best I can and if that means she wants MacNCheese, then that is what we have to do.  We do, however, invest in some AMAZING vitamins for her.  I believe since she just doesn't have the stomach and stamina to ingest all her food, that we needed to get her the "real deal" on vitamins and minerals.  I can sit here and type before you that it has affected her SO GREATLY in a positive way.  With her immune system compromised, she seemed to be getting sick so often even if we weren't around other people.  Since she has been on this, she hasn't gotten sick once.  It is a gift!  It is from 90 for Life and called Beyond Tangy Tangerine if you are interested!  You can find it on their site HERE.  We also add the calcium liquid to hers.  Adults can take it as well and it is yummy.  I mix hers in yogurt, along with a little olive oil for extra fats. 
 
Until next time...take ONE DAY AT A TIME, enjoy the moments that are good.  God has a plan in ALL circumstances!  Be blessed!

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